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Special Announcements

Caring for the Caregiver: Perspectives on Literature and Medicine
by Annie Medeiros

Peace Crane

One of the first things you noticed when you walked into the former armory—the central gathering place at the Maine Humanities Council’s November 9-10 conference for health care professionals—was a large mobile of 1,001 hand-folded, multi-colored peace cranes. On each table, instead of Prozac pens and Diflucan mints, there were Gerber daisies and origami sculptures. Small white lights lit the rafters and shone off the hardwood floors, creating a warm and inviting ambiance. That sense of welcome and comfort permeated the two-day conference. ::: read the whole article



Podcasts from Caring for the Caregiver

You can hear podcasts of talks given by Rita Charon, Rafael Campo, Veneta Masson and Judy Schaefer at the Caring for the Caregiver conference by visiting the Maine Humanities Council’s website! (Never listened to a podcast? Fear not, it’s easy! Our website can walk you through the process, then you can listen to these leaders in the Literature and Medicine movement on your computer, IPOD or MP3 player at your leisure!).



Our Literature & Medicine Anthology Will
be Available in June

Literature & Medicine groups are always searching for meaningful readings and often have tight budgets. A good anthology is a tremendous resource, and can help facilitators and group members explore readings they might not otherwise find. Although there are many literature and medicine anthologies available, Imagine What It’s Like: A Literature and Medicine Anthology, the Maine Humanities Council’s upcoming publication, is different because it deliberately reflects the range of readings we hope Literature & Medicine groups will include. It combines a diversity of voices, including wide representation of-and from-a variety of health care professionals and people of diverse backgrounds, situations and conditions.

The anthology has been a labor of love for editor Ruth Nadelhaft, a longtime Literature & Medicine facilitator and retired professor of English from the University of Maine; Victoria Bonebakker, Associate Director of Maine Humanities Council; and designer Lori Harley. For the past eight years, Ruth has carefully read hundreds, if not thousands, of short stories, poems, essays and personal narratives as a facilitator for three different L&M groups. She drew upon this experience as she edited Imagine What It’s Like. The readings she gathered illuminate the experience of illness, treatment, death, dying and care giving from a variety of viewpoints. They are also unusually diverse, including poetry, prose and drama selected to foster reflection and understanding about the human dimensions of health care.

The University of Hawai’i Press will publish the anthology in June 2008 with support from Anthem Blue Cross/Blue Shield, the Morton Family Foundation, NEH, Maine Humanities Council and the Hawai’i Humanities Council. We at the Maine Humanities Council are also grateful to Craig Howes, Director of the Center for Biographical Research at the University of Hawai’i for his help and interest in the project.

Check the Maine Humanities Council web site to learn more. If you have already signed up to receive Synapse, you will automatically receive an email with ordering information once the anthology is available.

Curious about the readings included in Imagine What It’s Like? Here is a small sampling, with brief annotations by editor Ruth Nadelhaft:

Dannie Abse “Case History”: poem
As “Case History” makes clear, Dannie Abse brought to the practice of medicine his full identity as a Jew, a Welshman, and a physician. His willingness to reflect on his duty to consider the welfare of his patient while acknowledging his barely contained fury is wonderfully expressed.

Felicia Nimue Ackerman “Applicants”: short story
Ackerman examines the emotional calculations that may determine the fate of a desperately ill patient. Eligibility for expensive and technically sophisticated transplant surgery rests on many factors. Ackerman’s incisive short story explores some of the criteria not always understood, including the presumed value of a close relationship with a potential caregiver. From the perspective of the applicant, the cost of receiving care may not be quantifable using conventional means.

Henri Barbusse “The Eleventh”: short story
Long before the advent of Managed Care, Henri Barbusse contemplated the spiritual costs of care that is rationed. “The Eleventh” evokes all the dimensions of suffering in a world ruled by the unequal distribution of scarce resources. Ordinarily when we consider Managed Care, we focus on the needs and frustrations of the ill and those who represent them. Barbusse shows the moral devastation of those who carry out the rules of scarcity; he provides a measure of the real costs to a whole culture in which not enough care can be given.

Joy Harjo “Three Generations of Native American Women’s Birth Experience”: essay
When she writes of the births of her two children, Harjo, a Native American writer and activist, soberly contrasts the experiences: one, when she was barely sixteen, and the other, four years later. She embeds each experience in the history of her family and her tribe, and implicitly in the experience of childbirth in a world divided by race and generation. Harjo walks between and within these worlds, allowing the reader to share a series of complex birth stories whose meaning is still evolving.

Leslie Nyman “Wisteria”: short story
Being present at the death of a patient remains one of the greatest challenges and rewards of giving care. Leslie Nyman was a registered nurse for fifteen years, and her short story comes to us from that perspective. “Wisteria” evokes memory and nostalgia, in which in a patient, who drifts in and out of reality, frightens a young and inexperienced nurse.

Jonathan Shay “Betrayal of ’What’s Right’”: excerpt, non-fiction
Jonathan Shay, MD, PhD, has now written two books about his work with traumatized veterans of the Viet Nam war; this excerpt is from the first, Achilles in Vietnam. Shay treats and studies trauma in the context of the Trojan War, as reported by Homer. The juxtaposition of ancient literature and contemporary suffering serves to enlarge and deepen the veterans’ and the reader’s understanding of the immediate and long-term consequences of physical and emotional trauma.



The 2007 Literature & Medicine Evaluations

According to the program’s evaluator, Dr. Bruce Clary of the Muskie School of Public Service at the University of Southern Maine, the evaluation results for 2007 once again indicate that Literature & Medicine has a positive impact on participants. These results are consistent with those from 2006 and 2005.

In his 2007 report, Dr. Clary writes that the participant evaluation outcomes significantly reflect the basic program goals. For a majority of participants, participation in the program had a “medium to large influence” on participants’ professional and/or personal life in the following areas: increased empathy for patients, greater cultural awareness, improved interpersonal relations and more job satisfaction.

Here are some of the comments made by participants in 2007:

“It has helped me better understand the duties of my co-workers, the stresses they face, and the importance of listening to the patient. The information and insight I have learned will help me provide better service to the hospital staff and patients.”

“[It] broadened the scope of my experience interacting with such a range of individuals within our organization. There is no other such unique opportunity [that is so] very enriching. It gives me hope for the health of the organization within the larger healthcare system.”

“It helped me to better understand the other cultures and not to be so hasty in making judgments until I had all the facts and understood more about their medicine.”

“I gained more respect for diverse cultures and the ways things are seen in relationship to medicine.”

“I am a clerk. Patients walk in the front door and come to me for answers whether the question has to do with my department or not (Primary Care)... Angry veterans come in everyday and get angry with the system, etc...[Our discussion of Achilles in Vietnam helped me understand that] it isn’t me [they are angry with], it’s what they live with. I can better separate myself from their anger instead of taking it personally.”

“I was having some difficulty interacting with a staff member from a group outside of my own team. As we got to know each other better through this program we...came to appreciate each other in new ways. The project that we were working on went on to become very successful.”

To read the full report, please click here (pdf 357Kb).


Welcome to Missouri!

Saint Luke’s Hospital in Kansas City is hosting Missouri’s first Literature & Medicine program this year! Learn what is happening in other partner states in National Connections.


 

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Literature & Medicine has received major support from the National Endowment for the Humanities.

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